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Isa_Girl Scout.jpg A BROWNIE
Isabel just has bridged from Daisies to Brownies in Girl Scouts. She really likes belonging to this group. They did a ton of things this year. The leaders were both so nice. They made Isabel feel welcomed. That gave me reasurance when I left her at the meetings. Next year we start the Girl Scout cookie sale. So next Jan/Feb give us a call if you want any. We are so proud of Isabel. I am also happy that she found something she really enjoys. By Aimee Coelho

Halo off.jpg Still_Standing w halo

Tuesday, June 6, 2006

Dear Friends and Family,

We are sending this email with wonderful news to share!  After seven months, Lindsay’s halo was removed at 9:30 AM today.  She had a CT scan yesterday which showed her bones had fused beautifully from the base of her skull to Cervical Vertebrae 5.  Dr. Pang told us this morning that she was the youngest and smallest patient to have this specific type of procedure done, which explains why we had to wait so long for the surgery in November.
He wanted to be sure everything was perfect.
   

Also said he recently attended an international neurosurgery conference and gave a lecture on her rare case.  He feels the entire experience went exceptionally well.  

Thank you to all of you who prayed for her, and us, through this very difficult ordeal.   We couldn’t have done this without all of your love, encouraging words, prayers and support. We are humbled by your love and friendship. 

Love,
Margaret and Milo Terzich

“What I’ve Learned”

By Joanna Campbell

 

[I wrote this for my last newsletter as President of the Orange Blossom Chapter (Orange County , CA) of LPA. At the time, my daughter was 13]. April 2006

  

         First and foremost, the time has come for those of us that re-started the Orange Blossom Chapter (OBC) to pass the LPA-OBC baton to new families. When Vicky Schulte and I re-started OBC more than 10 years ago, her daughter Michelle was just beginning kindergarten and my daughter Elizabeth was 2 ½. Michelle is now looking at colleges and Elizabeth is firmly involved in the middle-school/pre-teen world.  I remember, at the beginning, I couldn’t even think about her going to kindergarten!  My baby!  How would she do?  Turning her loose in the big world!  No Way!

         Well, both girls have grown up beautifully and I know a huge part of that is due to our involvement with LPA, both locally and nationally.  I have learned so much from my friends in LPA; average and lp, adult and kids.  Here are a few of the things I’ve learned:

·       I have learned how to have grace when you really want to rip  some strangers head off because they are being rude.

·       I have learned how to tell the difference between innocent curiosity and a person who is a jerk.  

·       I have learned to have patience when it takes longer to get places. 

·       I have learned to focus on my children, husband and friends like there is no one else around when we are in public—because no one else matters anyway.

·       I have learned that sometimes it really stinks when the water park won’t let you on the slide you’ve done 12 times before,  but that the management will also give in (one time) when your whole class is chanting “Let her go!” behind him. 

·       I have learned to shop carefully for clothes and shoes. 

·       Through my adult lp friends I have learned when something is really an issue and when to let something go, and most importantly, when I was being foolish or overprotective or too sensitive.

·       I learned to have a thicker skin – that’s probably one of the biggest lessons.

·       I’ve learned that, for the most part, the world is a good place, but that once in a while, some comment, or accusation, or assumption will come out of the blue and take your breath away. 

·       I’ve learned that sometimes seemingly healthy people will end up with surgery no matter what. 

·       I’ve learned to be an advocate for my children which has carried over into being an advocate for my life and other family members as well. 

·       I’ve learned not to be intimidated by doctors.

·       I’ve learned it’s not a question of “having” the time, it’s a question of “making” the time.  Everyone’s life is busy, but we make time for our priorities.

 

Personally…

·       I’ve learned what my some of my skills are; how to put on a Regional and National Conference, how to organize an event, and how to run with an idea and make it happen.

·       I’ve learned to laugh and be proud of who each of us are.

·       I’ve learned that believing with every fiber of my being that my children will have a great life makes all the difference.

My wish for everyone who comes in contact with LPA—whether it be average-height parents or an lp child—is to find just one friend. OBC re-started because Vicky and I became friends. We started as women who had something in common (daughters with dwarfism), but then we became friends and created a relationship on our own.
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